Friday, April 25, 2008


Anthony had a good, quiet night. The nurse came in at midnight to start his next IV and he slept through it. He woke up at 3:30 when she came in to disconnect the IV, and look at his spots. They're neither better nor worse this morning, but at least he's not itching as much. We settled back to sleep pretty quickly, and slept until 5:30.

Other than that, we're waiting for Mark to arrive. I will go to work for a little while today. Mark and Anthony will spend time in this room coloring, reading books, watching movies, etc. Anthony can't leave the room because he's in isolation from the "suspected case" of chicken pox. So this little room will be his everything for next couple of days.

I don't know when we'll get out of here, or what the next step in treatment is. Our transplant team feels that once he shows no reaction to the IV treatments, we can finish the IV treatments at home. Our pediatrician is dictating his treatment, though, so it's all going to come down to what the pediatrician is comfortable with. I'm sure Mark will talk to him about that today.

Anthony got some puzzles to play with from the Child Life department yesterday, so he and Maw Maw and Paw Paw did a Curious George puzzle before they left last night.

And then when he got up this morning, he wanted me to take a picture of him in bed snuggled up with his friends.

More updates later!


Lisa and Aiden said...

Laurie, I don't know why seeing those photos of Anthony in the hospital are tearing me up.. but it just does. Anthony is just that kid that every liver mom wishes her child was. He is my inspiration in this road we are traveling. To see him on that bed just doing these puzzles and laying with his toys it reminds me just how special and amazing these kids are. Anthony we love you buddy and hope you get to go home very soon. Hugs from our family to yours! XOXOX

Stacy said...

Wow - he looks so good for having to be inpatient! I hope that he does well with the IV treatments and that he can finish these up at home. Would that mean a picc line?

Praying for you guys - send me an e-mail and let me know which hospital you guys landed out.

Lots of love!

Renee said...

Just reading about this, Laurie. Looks like he's taking it all well. He's so cute. And apparently, a ladies man too!

fairenuff said...

Wow, Anthony, I love the photo of you snuggled up in bed with your friends. What a great idea to get Mommy to take it! Hope you feel better soon, lots of love all the way from the UK.